Discover what our patients have to say regarding their office visit, surgical experience or recovery process. We also encourage our existing patients to share their own experience!
- Meningeal Diverticulum, Tarlov Cyst surgery
- Meningeal diverticulum
- Tarlov Cysts
- Tarlov Cyst Sacrum area
MP from Scotland
- Tarlov cysts Surgery
Pre-surgery from Dr. Feigenbaum, I was in such distress with pain and lifestyle inconvenience; I was distraught with how to deal with this until speaking with Dr Feigenbaum and Debbie which gave me hope.
I can say improvement has been gradual but always progressive to date.
As of right now, I can drive my car for up to 2 hours with not much more effect than general stiffness. Before surgery I refused to sit at all. Now my perineum pain is gone and waterworks I think is normal for a man of my age. Previously anything from 6 to 10 trips to the loo through the night. Now only once.
I am so grateful for the skill and knowledge of Dr. Feigenbaum to be able to give me a quality of life which has to be appreciated when it seemed the rest of the medical profession were in denial with this condition.
My sincere thanks to Dr. Feigenbaum and to Debbie.
Lynn from Michigan
- Tarlov cysts
Shelley from Kansas
- Anterior Sacral Tarlov cysts
Sabrina from Kentucky
- Tarlov Cyst Surgery
Michelle from Australia
- Tarlov Cyst Surgery
Anna from Alabama
- Meningeal Diverticulum and Detethering
Barb from Ohio
- Sacral Tarlov Cysts Treatment
Wendy from Maine
- Tarlov Cyst Surgery
Paul from Canada
- Tarlov Cyst
“...I don't regret my surgery for one moment. I have greatly improved since having it and would have done the same thing all over again. Dr. Feigenbaum and his team are miracle workers.
My wife and daughters and I would all like to thank Dr. Feigenbaum and the entire team for all your help and support in pursuing my appeal.”
Mrs. Dale K
- Tarlov Cyst Surgery
“I am 4 years post surgical today. I want to tell all patients that even though the monitoring ends at 2 years, you are not done healing.
Keep the faith and the future can keep improving.
At an active 59 years old (ballet classes and all), I developed the nightmare of a symptomatic Tarlov Cyst. By the time I had the surgery, I had experienced a misguided decision to have a procedure at Hopkins that was totally messed up (by a nurse who sat me upright after the spinal procedure, despite my pleas)....till a phone call came...too late!
I was in agony and bed ridden about 85% of each day and could no longer put one foot in front of the other. Then I had the surgery with Dr. Feigenbaum and his team. Miracle when they first got me up....the next day!....and I could put one foot in front of the other. I cried for joy and grinned like a Cheshire Cat as I wobbled down the hall.
Yet because of my Hopkins experience and slow diagnosis due to the rarity of knowledge about the condition, I sustained lots of nerve damage.
I continued on Tramadol (NSAIDS no longer an option because I developed an ulcer, hiatal hernia, etc. from trying to avoid prescription medications) and went off after about 2 years to Duloxetine (40 mg), which I have just stopped after about 2 years (warning-not easy to stop, so research before beginning!). But it did help me while I was on it and I only supplemented with Acetaminophen...fast relief was especially effective.
Never thought I would travel, as I had dreamed about doing after retiring, but I have! In Italy, 3 years after my surgery, I left my cane in the AirBNB and climbed every step in the Tower of Pisa and Brunelleschi's Dome. I still have difficulty sitting but have been able to walk more and more.....couldn't do a quarter mile at first. The crowning gift of healing from Dr Feigenbaum's skill was a bucket list trip to New Zealand and Australia. Yes the plane ride had me circling the seats, but I made it! To top it off, I hiked up my first mountain since before my Tarlov nightmare - Mt Wellington, NZ. I cried tears of joy and took the above photo to send to Dr Feigenbaum. Not a day goes by that my thoughts and heart does not thank him and his staff. Not only were they skilled and wonderful pre, during and post surgery, but you remain their patient forever, and they have helped and reassured me numerous times. I often beg to be charged! I will never be able to thank Dr. Feigenbaum enough. He gave me my life back with my family, and a life that that is full of wonder and possibility.
I now walk from one end of Manhattan to another and as often as I can, I avoid public transportation. I relish my gift and give thanks for each beautiful step and adventure made possible by the amazing skill and dedication of Dr. Feigenbaum and his staff.
Heartfelt and forever thanks!”
Rebecca from Ohio
- Tarlov Cyst Surgery at the S1 Nerve Root
“I had a 1.9cm Tarlov cyst on the left S1 nerve root, deep inside my sacral cavity. This caused bone erosion and nerve compression resulting in the tumultuous nerve pain you all know too well. I had been in dire pain for about two years prior to my surgery and had been out of work due to the pain for over a year.
12/17/09 is the day I was reborn. Although the first two months of healing after surgery were probably the hardest to deal with during my whole Tarlov life, I still consider this single action by my hero, Dr. Feigenbaum, as the point in time where I gained my life back.
Here are some of my proudest benchmark moments:
- 3 months post-op: Returned to work full-time (sitting!), skied down a black diamond
- 7 months post-op: Drove a Penske truck across the country from California to Ohio in 4 days, averaging 12-14 hours of driving a day, and even loaded and unloaded two huge trucks
- 8 months post-op: Played in my old softball league (and continued playing in a league yearly)
- 9 months post-op: Went white water rafting for 6 hours in class V/VI rapids (this has been an annual trip ever since)
- (Almost) 6 years post-op: Went skydiving
I cannot say that I am back to 100% compared to how I felt before the Tarlov pain, but I can say that I have 100% of my life back. I no longer am limited by the residual pain left behind. My affected leg still randomly hurts, throbs, cramps, spasms, etc., but it is VERY minuscule compared to the pain I was living with prior to surgery. Throughout the past 4 years, I have often worked 12-16 hour days sitting at a desk, and although sometimes bothersome, the pain never becomes impeding.
So to Dr. Feigenbaum, I would again like to express my most sincere gratitude for your research and interest in this rare disease. Thank you for taking the time to develop new and effective treatments to give your patients their quality of life back, instead of telling them to âlearn to cope with the painâ, like so many other providers have done. My children are grateful to you as well for giving them their mom back.
To those who are still suffering and feel there may never be a salvation for them, please don't ever give up. Be a fighter because your life is worth it and you can regain control of it.”